Sunday, January 22, 2012

What can I do?????

It's Sunday afternoon, day 5 of chemo hit three. It's a critical stage for me and based on how I've travelled in previous chemo hits, I know it can tend to be a low point. I am reluctant to blog on these days because they really are few and far between but I guess it wouldn't be an accurate journal of this process if I avoided talking about the occasional low day. I may write this then delete it and never share in some cathartic effort to shed my disposition. Or I may decide you poor suckers have to share some pain with me and go ahead and publish. My advice is if I have gone ahead and this is my blog, stop reading and go pour yourself a drink or go have a swim or something,anything other than subject yourself to my grumbly rantings. I have an oversized pair of cranky pants on and i cant find the shoestring to untie them right now. Even Murphy is over me today. And I knew it was going to be a hard day almost instantly after I opened my eyes this morning.

It's raining which doesn't help although in my own glumness, I am quietly relieved that my inability to get up and get out there is reflected in the weather also. It's so much worse when it's gloriously sunny and your blood count is so low you can't find the energy to look in the cupboard for your bikini let alone lather up and deal with sand. I feel for the last of the holiday makers, the stragglers and the hard core, still hanging in up here as the weather turns a bit so so which gives me hope i can still summons empathy for others instead of being so focused on myself. But enough about them....... :-) ahhh the weather, one minute its steamy and sunny, the next a downpour. Be nice to run in, if only I could. Baaaaaah.

I've tried not to blog much about the symptoms of chemo and there is a reason for that. I have hardly been whacked by them. I have really felt pretty happy with how Ive managed to work through each of the cycles with minimum pain and not THAT much inconvenience. But today it seems that chemo has decided to amp up its efforts against me and hit me with several whammys all at once. Of course, I need to embrace these signs as it clearly is my body confirming for me that the treatment is working. I'd yell 'go your hardest' but today, I think it is. I was starkely reminded by Boycey not that long ago when I asked about taking a muli vitamin to help build me up, that and I quote " we are trying to kill things here Kym" and so we are. And today, right now, I feel like chemo really is slowly killing me. My resilience and efforts in applying a positive mental attitude is being very much tested, right now, as i write. I have been lying almost comatosed on the lounge for hours watching the rain fall in between the sunny hits. There is a section on the back deck where the rain strikes more heavily than other parts ( fix-a-upper house this one) and I've been lying here watching the droplets fall noticing that the wood on that part of the deck has been worn down over time much more than the rest of the deck. And I feel the parallism with every drip drip. It's not one thing, we can all cope with one symptom or another, but the accumulation that is wearing me down. Over the past day or so I have experienced....from the top people,
Sensitive scalp linked to hair loss;
Stinging eyes which I fear has a link to eyelashes falling out (altho I am happy they're still here!);
Aching gums;
Metal taste buds;
Nose bleeds - due to platelet levels;
Sore mouth in general although I am soooooo happy to report no ulcers;
A cough and cold which has now been going on 22 days, quite frankly,just ridiculous;
Aching bones specifically in my chest plate
And a general lethargy which makes recognising myself almost impossible.

I am tired. Really tired. Not just in the physical sense but mentally. This treatment is wearing me down. So what to do? Well, rest is not even an option but an obligation. I have no choice, my body refuses any other remedy. I am also reading. At the moment I am reading Andre Agassi's autobiography Open. It's been great because (a) Andre's bald like me and (b) he talks a lot about his demons, his mental attitude, his vulnerability, his pain and his search. It's been great to read into the psyche of someone whom presents in their peak form but in fact, has the greatet battles mentally within themselves. Command and control. Shouldn't it be that easy?
Apparently not.
I am laying low today although Bert in her magical way still managed to get me out briefly (a thousand loves to you) and I will return the check up calls and texts tomorrow to the other beautiful people I have missed today, I know I will.

I also know today will pass and tomorrow I could well wake at 5:30am and think about a walk and a swim, a gym class, popping into the office or a goal or 7. Therein lies probably the number one all blazing symptom of chemo for me.....I just won't know until tomorrow. Above all I will work hard at exercising patience and acceptance that this is what 'normal people' experience as part of chemo and that it's all ok. I need to resist viewing rest as a sign of weakness or laziness.

There is a quote I've discovered in my search to boost my inner strength and resilience and it's from a British Politician and novelist that says
" Patience is not passive, on the contrary, it is active because it is concentrated strength".

Concentrated Strength. I like it. That's what I'll do.....K x

7 comments:

  1. Yes you are correct - the chemo is doing what it is supposed to but no, that does not make it any easier to cope with right now! It is crap Kym and if I could take all this away you know I would, as would many others! Instead, know that we are all cheering you on from the sideline! Your swing might not be at its best today but we all know you are still going to hit that ball out of the park and get to that home base a champion!
    Lots of love J and B who said he is never over his FGM xx

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  2. Someone not so long ago gave me a book 'A Thousand Path's to Patience'...I just thougth of you and opened a page and came to this quote: "The mystery of existence is the connection between what we are willing to endure and for how long" - which seems apt in the situation you are faced with.

    So, I lit a candle for you and picked a card from my MJ enlightenment pack ...I chose the 'PEACE' card. Peace of mind is, aparrently, the resolution to any problem because it is beyond understanding and trancends all fear, pain and problems. So I wish peace for you and send you love. Not long now babe, not long xxxx Love Cate xxx

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  3. Hello dear friend, while I wish with all my heart that you weren't having this absolutely effing foul thing go on I am so very happy to share the crap and read your blog that comes from the place that you'd prefer not to visit. But you know, you are only stopping by in this crappy place momentarily and concentrated strength will be with you again. Of that I have no doubt. And I too, if I could would take all of it away. I think of you often. Will call tomorrow. Love you, Jac xx

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  4. So sorry you are going through this Kym, but as the experts say it is how it is meant to be and a sign the chemo is doing its work. Don't be too hard on yourself, you are a very strong and determined person and it is OK even for the strongest of us to have our doubts at times. These feelings will pass.
    In search of some clever inspirational things to contribute I came across these.
    "A diamond is a chunk of coal made good under pressure" & "Life is like a grindstone - whether it grinds you down or polishes you depends on the material you are made of".
    So knowing the polished diamond that you are it can only become sparklier as a result of the 'grindstone' you are being subjected to right now.
    Thinking of you and hoping the rains have stopped.
    And while we are on the inspirational quotes train of thought - "It takes both rain and sunshine to make a rainbow"
    Love
    Silvana

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  5. Dear Kym, having strength to surrender, is strength itself. Definately concentrated strength! There's a beautiful book by Elisabeth Tova Bailey called 'The sound of a Wild Snail Eating' that tells both her story of endless days in bed and the great things she learns along the way - including the sound of snails chomping (yes! they chomp!). Through her illness she finds opportunities in every moment. I read a quote this morning by a woman who lost everything except her life and I though of you. She beautifully observed "It matters not what happens to you in this world, but what you do with what happens to you". This blog is testament to what you are doing - your resilience, strength and great patience. And your continued inspiration to others. Ruth xx

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  6. Kym babe, give it about 18ish days, and I predict if you sit still enough on that gorgeous day bed of yours, you will hear the sound of hair growing!!! lol xxx kisses and love

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  7. hi lovey thanks for your brave, honest blog. surrendering is hard for us driven folk but actually you have no choice....in the very short term! the fatigue and other awful symptoms will pass, just as the free brazilian will grow over. so surrender in as much as let yourself feel what you feel, letting the chemical cocktail do its stuff, allowing your body the time it needs to rebuild, and your mind the space to acknowledge that this is hard and this journey sucks! love to you Jen

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